What they didn't tell us...

I find it interesting that there is so much that medical personnel did not tell us, for whatever reason. I find it a lesson in how to ask the right questions.

Among the information we have gleaned from the internet as well as friends in the medical community:

• Deborah is not "cured". This is a biggie for us. Normally when you leave the hospital it is with the idea that you are better and just recovery remains.Kawasaki's still has to run it's course and can take as little as 2 weeks or as long as 12 weeks.
• Deborah is going to be tired - very tired, for quite awhile.
• emotional fragility comes with it. For us, this has meant that she is uncharacteristically prone to tears. Other sources have mentioned that anger can be another manifestation of this, but we have not seen it as of yet.
• the risks of the medications were briefly mentioned as vague risks; no details were discussed
• the complications that can be a result of the disease itself were glossed over. The possibility of a heart attack if she remained untreated was trotted out, but nothing else.
• even if she is cleared by the cardiologist in 8 weeks, Deborah will need an echocardiogram every 1-2 years for the rest of her life to watch for damage not that is not immediately apparent.